Update

Many of you have heard the latest bump in the road for Emily but I wanted to post about it so that more people can be praying for our sweet baby girl.
We found out earlier this week that there is a strong indication that Emily has spina bifida or a tethered spinal cord. We noticed a small hole on her lower back around her tailbone a few weeks ago and asked the pediatrician about it at her six month check up. An MRI is needed to determine her condition and severity but she would need to be sedated with anesthesia and our doctor thinks we should wait until Emily is stronger and better able to handle sedation due to her respiratory distress at birth and prematurity. Both of these conditions can be quite serious and require major surgery. Obviously we are devastated by this recent news and not prepared for what may come of either diagnosis. I have been told that worst case scenarios could leave her paralyzed from the waist down, in a wheelchair or in leg braces.
I look at my sweet baby girl and can't imagine her not being able to dance herself silly, ride a bike, or have a daughter of her own someday. I am just in shock that everything we have been through these past six months is not in fact over and behind us. Please join us as we go to The Father on behalf of our Emily, begging for her health to be restored. Faith as small as a mustard seed can move mountains. God can heal Emily. He gave her life when she was born early. He can give her legs strength to run marathons, her back and hips flexibility to be a perfect gymnast. He can answer our prayers and fulfill our dreams for her. He can do anything. God has been so good to us already and has seen us through our every struggle. I know that God's plan for Emily is bigger than I could ever dream myself. He is in control and will see us all through this next chapter in her life. Right now everything is just so scary. We have a second opinion coming up this week and hope for some more information and a plan other than waiting. Please remember Emily in your prayers today.